{"id":23313,"date":"2026-11-05T13:22:42","date_gmt":"2026-11-05T11:22:42","guid":{"rendered":"https:\/\/farmacija-mic.lv\/?p=23313"},"modified":"2026-11-05T13:22:43","modified_gmt":"2026-11-05T11:22:43","slug":"pieaugot-medikamentu-izmaksam-aicina-vel-ziedot-trisgadigai-meitenei-retas-genetiskas-slimibas-arstesanai","status":"publish","type":"post","link":"https:\/\/farmacija-mic.lv\/en\/pieaugot-medikamentu-izmaksam-aicina-vel-ziedot-trisgadigai-meitenei-retas-genetiskas-slimibas-arstesanai\/","title":{"rendered":"Pieaugot medikamentu izmaks\u0101m, aicina v\u0113l ziedot tr\u012bsgad\u012bgai meitenei retas \u0123en\u0113tisk\u0101s slim\u012bbas \u0101rst\u0113\u0161anai"},"content":{"rendered":"\n<p class=\"wp-block-paragraph\">Pieaugot medikamentu izmaks\u0101m, nepiecie\u0161ami v\u0113l 35 000 eiro tr\u012bs gadus vecajai Ol\u012bvijai Ruseckai retas un progres\u0113jo\u0161as \u0123en\u0113tisk\u0101s slim\u012bbas \u0101rst\u0113\u0161anai, a\u0123ent\u016bru LETA inform\u0113ja labdar\u012bbas organiz\u0101cij\u0101 &#8220;Ziedot.lv&#8221;.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Septembr\u012b organiz\u0101cija aicin\u0101ja sabiedr\u012bbu pal\u012bdz\u0113t meitenes \u0101rst\u0113\u0161anai, un l\u012bdz \u0161im saziedoti 220 000 eiro. Tom\u0113r p\u0113c preciz\u0113tas inform\u0101cijas sa\u0146em\u0161anas no z\u0101\u013cu ra\u017eot\u0101ja noskaidrojies, ka medikamenta izmaksas ir par 15 000 eiro augst\u0101kas, nek\u0101 s\u0101kotn\u0113ji pl\u0101nots. Pirm\u0101 z\u0101\u013cu deva jau ir pas\u016bt\u012bta, ta\u010du \u0101rst\u0113\u0161anas s\u0101k\u0161anai v\u0113l nepiecie\u0161ami 35 000 eiro.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">J\u016blija beig\u0101s Ol\u012bvijai diagnostic\u0113ta 2. tipa neiron\u0101l\u0101 cero\u012bd\u0101 lipofuscinoze (CLN2) &#8211; reta, progres\u0113jo\u0161a \u0123en\u0113tiska slim\u012bba, kas pak\u0101peniski at\u0146em b\u0113rnam kust\u012bbu, redzes un citas dz\u012bv\u012bbai svar\u012bgas sp\u0113jas.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">K\u0101 nor\u0101da organiz\u0101cij\u0101, \u0101rsti \u0123imeni inform\u0113ju\u0161i, ka ap \u010detru l\u012bdz piecu gadu vecumu b\u0113rni ar \u0161o slim\u012bbu parasti s\u0101k zaud\u0113t apg\u016bt\u0101s prasmes, ap se\u0161u gadu vecumu b\u016btiski pasliktin\u0101s kust\u012bbu sp\u0113jas un epilepsijas l\u0113kmes k\u013c\u016bst gr\u016bti kontrol\u0113jamas, savuk\u0101rt se\u0161u l\u012bdz septi\u0146u gadu vecum\u0101 var iest\u0101ties aklums. Bez specifiskas \u0101rst\u0113\u0161anas b\u0113rnu ar \u0161o diagnozi paredzamais dz\u012bves ilgums ir aptuveni desmit gadi.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">P\u0113c z\u0101\u013cu ra\u017eot\u0101ja preciz\u0113t\u0101s inform\u0101cijas medikamenta izmaksas gad\u0101 sasniedz aptuveni 510 000 eiro. \u0100rst\u0113\u0161anas s\u0101k\u0161anai nepiecie\u0161ama vismaz se\u0161u m\u0113ne\u0161u rezerve jeb 255 000 eiro.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Nacion\u0101lais vesel\u012bbas dienests Ol\u012bvijai pie\u0161\u0137\u012bris individu\u0101lo z\u0101\u013cu kompens\u0101ciju 30 000 eiro apm\u0113r\u0101, ta\u010du t\u0101 nodro\u0161ina tikai nelielu da\u013cu no terapijas izmaks\u0101m. T\u0101d\u0113\u013c iesp\u0113ja sa\u0146emt nepiecie\u0161amo \u0101rst\u0113\u0161anu joproj\u0101m liel\u0101 m\u0113r\u0101 ir atkar\u012bga no sabiedr\u012bbas atbalsta, nor\u0101da organiz\u0101cij\u0101.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Avots: LETA<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Pieaugot medikamentu izmaks\u0101m, nepiecie\u0161ami v\u0113l 35 000 eiro tr\u012bs gadus vecajai Ol\u012bvijai Ruseckai retas un progres\u0113jo\u0161as \u0123en\u0113tisk\u0101s slim\u012bbas \u0101rst\u0113\u0161anai, a\u0123ent\u016bru LETA inform\u0113ja labdar\u012bbas organiz\u0101cij\u0101 &#8220;Ziedot.lv&#8221;. Septembr\u012b organiz\u0101cija aicin\u0101ja sabiedr\u012bbu pal\u012bdz\u0113t [&hellip;]<\/p>\n","protected":false},"author":37,"featured_media":13904,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"mic_cinema_image":0,"footnotes":"","_labiux_rail":0},"categories":[76,10],"tags":[3280,12,2104],"mic_flag":[],"class_list":["post-23313","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-jaunakie-raksti","category-zalu-cenas","tag-lipofuscinoze","tag-nvd","tag-reta-slimiba"],"aioseo_notices":[],"aioseo_head":"\n\t\t<!-- All in One SEO 5.0.4 - aioseo.com -->\n\t<meta name=\"description\" content=\"Pieaugot medikamentu izmaks\u0101m, nepiecie\u0161ami v\u0113l 35 000 eiro tr\u012bs gadus vecajai Ol\u012bvijai Ruseckai retas un progres\u0113jo\u0161as \u0123en\u0113tisk\u0101s slim\u012bbas \u0101rst\u0113\u0161anai, a\u0123ent\u016bru LETA inform\u0113ja labdar\u012bbas organiz\u0101cij\u0101 &quot;Ziedot.lv&quot;. Septembr\u012b organiz\u0101cija aicin\u0101ja sabiedr\u012bbu pal\u012bdz\u0113t meitenes \u0101rst\u0113\u0161anai, un l\u012bdz \u0161im saziedoti 220 000 eiro. Tom\u0113r p\u0113c preciz\u0113tas inform\u0101cijas sa\u0146em\u0161anas no z\u0101\u013cu ra\u017eot\u0101ja noskaidrojies, ka medikamenta izmaksas ir par 15 000\" \/>\n\t<meta name=\"robots\" content=\"max-image-preview:large\" \/>\n\t<meta name=\"author\" content=\"olita@mic.lv\"\/>\n\t<link rel=\"canonical\" href=\"https:\/\/farmacija-mic.lv\/en\/pieaugot-medikamentu-izmaksam-aicina-vel-ziedot-trisgadigai-meitenei-retas-genetiskas-slimibas-arstesanai\/\" \/>\n\t\t<meta name=\"generator\" content=\"All in One SEO (AIOSEO) 5.0.4\" \/>\n\t\t<meta property=\"og:locale\" content=\"en_US\" \/>\n\t\t<meta property=\"og:site_name\" content=\"Medikamentu Inform\u0101cijas Centrs\" \/>\n\t\t<meta property=\"og:type\" content=\"article\" \/>\n\t\t<meta property=\"og:title\" content=\"Pieaugot medikamentu izmaks\u0101m, aicina v\u0113l ziedot tr\u012bsgad\u012bgai meitenei retas \u0123en\u0113tisk\u0101s slim\u012bbas \u0101rst\u0113\u0161anai - Medikamentu Inform\u0101cijas Centrs\" \/>\n\t\t<meta property=\"og:description\" content=\"Pieaugot medikamentu izmaks\u0101m, nepiecie\u0161ami v\u0113l 35 000 eiro tr\u012bs gadus vecajai Ol\u012bvijai Ruseckai retas un progres\u0113jo\u0161as \u0123en\u0113tisk\u0101s slim\u012bbas \u0101rst\u0113\u0161anai, a\u0123ent\u016bru LETA inform\u0113ja labdar\u012bbas organiz\u0101cij\u0101 &quot;Ziedot.lv&quot;. Septembr\u012b organiz\u0101cija aicin\u0101ja sabiedr\u012bbu pal\u012bdz\u0113t meitenes \u0101rst\u0113\u0161anai, un l\u012bdz \u0161im saziedoti 220 000 eiro. 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Septembr\u012b organiz\u0101cija aicin\u0101ja sabiedr\u012bbu pal\u012bdz\u0113t meitenes \u0101rst\u0113\u0161anai, un l\u012bdz \u0161im saziedoti 220 000 eiro. 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